About

The Neuropathy Trust is a worldwide Charity (1071228) that was founded in 1998 by Andrew Keen to provide a lifeline to people affected by Peripheral Neuropathy (PN) and Neuropathic Pain (NeP). It is the primary function of the Trust to ensure, irrespective of the cause of the peripheral neuropathy or neuropathic pain (whether known or otherwise) that patients, family, carers and health care providers receive the highest possible level of information and support. The Neuropathy Trust is independent of any government, political ideology, economic interest or religion.

Who’s Who?

Trustees

Mr. Ian Keen (Chairman)
Miss Angela Brooks
Mrs. Jean Murphy
Mrs. Joyce Keen

Previous Patron
Sir Norman Wisdom

Chief Executive and Founder

Mr. Andrew Keen
Chief Executive and Founder
The Neuropathy Trust, PO Box 26, Nantwich, Cheshire,
CW5 5FP, United Kingdom

Volunteers
The Trust has many volunteers operating throughout the United Kingdom and Ireland

Principal Advisor
Dr. Simon J Ellis
Consultant Neurologist (UK)

 

Advisory Council

What is the Neuropathy Trust Advisory Council?

The ‘Advisory Council’ was established in order to bring together a group of dedicated and like-minded individuals who come from various disciplines but who share a common interest in peripheral neuropathy and neuropathic pain.

Dr. Simon J Ellis
Consultant Neurologist (Stoke-on-Trent, UK)

Biographical Note: Simon is a Consultant Neurologist at the North Staffordshire Hospital. He is visiting Professor in Neurosciences at Staffordshire University. He trained in neurology at Mount Sinai, New York and the Radcliffe Infirmary in Oxford. Dr. Ellis has been working with the Neuropathy Trust since it was established in 1998. Dr. Ellis is also the Director of Clinical Neurosciences at the North Staffordshire Royal Infirmary.

Professor Solomon Tesfaye
Consultant Physician and Diabetologist (Sheffield, UK)

Biographical Note: Solomon possesses an international reputation as a key opinion leader in diabetic neuropathy and many years of experience in conducting clinical research in diabetic neuropathy. Professor Tesfaye’s current research projects include imaging of the central nervous system in diabetic neuropathy and the pathophysiology of neuropathic pain and the genetics of diabetic complications.

Professor Andrew SC Rice
Professor of Pain Research/Hon. Consultant in Pain Medicine

Biographical Note:

Andrew is Professor of Pain Research at Imperial College London, where he is active in both in laboratory research and clinical medicine.

He is currently Secretary of the IASP Special Interest Group on Neuropathic Pain (www.neupsig.org) and Administrative Director of the Wellcome Trust funded London Pain Consortium (www.lpc.ac.uk). His research concentrates on trying to understand the mechanisms of neuropathic pain and indentifying and evaluating new therapies for neuropathic pain. He is also an Honorary Consultant in Pain Medicine at the Chelsea and Westminster Hospital, London, where as part of the multi-disciplinary Pain Management team, he provides a clinical service for patients suffering from neuropathic pain, in particular in the context of post herpetic neuralgia, peripheral nerve injury  and HIV neuropathy.

Professor Anthony H Dickenson
Professor of Pharmacology (London, UK)

Biographical Note: Tony has a special interest in the scientific basis behind the mechanisms and treatments of neuropathic pain. He is also particularly interested in further researching the clues to understanding changes in the nervous system.

Professor Praveen Anand
Professor of Clinical Neurology (London, UK)

Biographical Note: Praveen is the Head of the Peripheral Neuropathy Unit based at the Hammersmith Hospital, Imperial College London. The Unit focuses on molecular mechanisms in human neuropathies, with the aim of improving neuronal survival and regeneration, and preventing or treating chronic neuropathic pain. Collaborations with biotechnology and pharmaceutical companies are directed to bridge the gap between pre-clinical developments and successful clinical applications. The Unit has conducted 5 clinical trials for neuropathy in recent years.

Dr. Steve Allen
Consultant Anaesthetist (Reading, UK)

Biographical Note: Steve founded the pain clinic in Reading 21 years ago, when appointed as a consultant. His interest in neuropathic pain began 15 years ago with involvement in the treatment of post herpetic neuralgia.

Dr. Marios Hadjivassiliou
Consultant Neurologist (Sheffield, UK)

Biographical Note: Marios is an Honorary Clinical Senior Lecturer at The University of Sheffield and a Consultant Neurologist at Sheffield Teaching Hospitals NHS trust and Chesterfield Royal Hospital. His MD thesis was on the neurological manifestations of gluten sensitivity. His current research interests include the neurological manifestations of systemic diseases with an emphasis on gluten sensitivity as well as the aetiology of “idiopathic” ataxias and neuropathies. He runs a weekly gluten sensitivity/neurology clinic as well as an ataxia clinic.

Dr D Ganesh Rao
Consultant Neurophysiologist (Sheffield, UK)

Biographical Note: Ganesh is a Consultant Clinical Neurophysiologist at Royal Hallamshire Hospital Sheffield and also Honorary Senior Clinical Lecturer of Sheffield University. He has special interest in Peripheral Neuropathy and other Neuro-muscular disorders. His MD thesis was on autonomic neuropathy.  He is currently involved in research of gluten and diabetes neuropathy and neuronopathy.

Dr. Kerry Booker
Consultant Clinical Psychologist (Manchester, UK)

Biographical Note: Following an initial career as Research Fellow in Psychological aspects of Chronic Medical Conditions and subsequently as a Clinical Research Fellow for the Imperial Cancer Research Fund in Edinburgh, Kerry moved to Salford to develop a clinical service for chronic pain sufferers. He has worked as a full-time clinician in chronic pain management for the past 12 years. The Manchester & Salford Pain Centre is now one of the largest inter-disciplinary pain centres in Britain. Kerry leads research projects in Psychoneuroimmunology, return to work projects for pain sufferers and treatment outcome of group pain management programmes.

Dr Clare Daniel
Consultant Clinical Psychologist (London, UK)

Biographical Note: Clare originally trained as a nurse but then changed career and trained as a Clinical Psychologist. Since qualifying she has combined her interest in health and psychology and has worked with people who have chronic pain. She is now a Consultant Clinical Psychologist in London and is developing the clinical psychology service within a multidisciplinary pain team. The aim of the service is to help people with pain improve their quality of life. Clare is also a Research Associate at Imperial College London. Her current research interests include understanding the impact of neuropathic pain and peripheral neuropathy on people’s quality of life.

Dr Steve Hodgson
Senior Lecturer in Physiotherapy and Director of Hallamshire Physiotherapy, Sheffield, UK

Biographical Note: Steve has spent over 20 years working and teaching in the field of chronic pain and neuropathy.  He completed his PhD in shoulder rehabilitation and his current research interests are into the altered brain processing with chronic pain and subsequent compensatory movement patterns.  Previously, he worked in chronic pain units in Sheffield and now he divides his time between research, teaching and clinical practice.  He believes that many people with chronic pain can be helped if given treatment based on sound research evidence .

Mr. Andrew Keen
Chief Executive and Founder (Neuropathy Trust)

Mr. Ian Keen
Trustee and Chairman (Neuropathy Trust)

Well Known Supporters

Warren Mitchell

“About twenty years ago a virus attacked the nerves in my spine, leaving me temporarily paralysed from the waist down. I was working on a film in Australia at that time and, although I discharged myself from hospital in order to carry on working, those were some of the toughest days in my life. Although I couldn’t stand or move around during a scene, for example, the film-crew propped me up and gave me every help so that we could carry on filming. Afterwards I went back to hospital in Sydney and had lots of physiotherapy for two weeks. I was very fortunate because I was soon walking again and within six weeks I was tap dancing on another film set. I have, however, been left with residual neurological effects which do trouble me greatly. My feet, for example, really do feel as if they are sometimes going to explode; at times they are burning and other times freezing cold. I also have strange tingly sensations in my legs and a degree of spasticity because my nervous system has been damaged permanently. After my article appeared in the paper the Neuropathy Trust sent me some information and I know there are lots of you out there who are in a far worse condition than myself. I am lucky that my dear wife Connie is so supportive and allows me one self-pitying moan per week. It is reassuring to know that doctors and scientists the world over are now working hard, trying to find ways to overcome the damage to nervous systems and relieve the pain which can affect the quality of life so much. I wish them all well in their research.”

Previous Patrons

Sir Norman Joseph Wisdom, OBE (4 February 1915 – 4 October 2010) RIP Old Chum!

“When I was approached to become Patron of the Neuropathy Trust, I was delighted to offer my support and endorsement to such a worthy cause. What has impressed me the most about this organisation is the positive and encouraging manner in which it is tackling the huge task that it has undertaken.

The Trust, which has been founded upon the motto ‘Carpe Diem’ (Seize the Day), is proving to be a tremendous source of comfort and inspiration to many thousands of people affected by Peripheral Neuropathy and associated neuropathic conditions. It is bringing together people from all over the world, offering hope and a sense of purpose and worth to families, friends and carers. It is helping to bridge communications between patients and the medical profession, for the benefit of all concerned.

This important work must be encouraged and sustained and I would urge you to join in with me in supporting this charity.